We should all mourn for what we are doing to the disabled --really what we are doing to ourselves

http://www.nytimes.com/2005/01/01/opinion/01brooks.html

A Time to Mourn

“The world's generosity has indeed been amazing, but sometimes we use our compassion as a self-enveloping fog to obscure our view of the abyss. Somehow it's wrong to turn this event into a good-news story so we can all feel warm this holiday season. It's wrong to turn it into a story about us, who gave, rather than about them, whose lives were ruined. It's certainly wrong to turn this into yet another petty political spat, as many tried, disgustingly, to do.
This is a moment to feel deeply bad, for the dead and for those of us who have no explanation.”


I won’t be so generous –I think the media felt the public was going to get turned off from the bleak news of the tsunami; lost of viewerships and revenues. So they began trying to turn it into a more positive stories - a how we missed being one of the 150,000 dead bodies stories. The bureaucracy does this very same thing for the disabled.

You never see an accurate story about the troubles of the disabled. Many times they will want to write a story about the disabled –so they may go to an agency –the agency picks an individual who best reflect the agency. The story is played in the media as an individual who against grave odds is making it out in the community –and the negative to the story is this plateau of the individual is going to be challenged by the budget cuts. So the newspaper gets a sort of positive story such that it doesn’t knock down viewership, the private businesses and federal and state bureaucracies are protected from immorally of what they are really doing. Let’s not forget this allows the political establishment to be held unaccountable.

So the taxpayer would never be allowed to see a shitty and urine smelling house of a schizophrenic –where he has become medicated to such an extent that he can’t talk and control his going to the bathroom -because he has been troublesome for the private caregivers whose only interest is the extra income to the house. I’ve been in such a house –the exterior of the house was disgraceful compare to the typical homes of the neighborhood -the interior was a disgraceful dirty horror. But the leader of the house drove a new Cadillac. Everyone in the neighborhood knew what was going on—oh the silences of the good peoples.

So this was a private home and the man and woman were taking care of of this prior institutionalized man. The state rented a brand new car -where the staff drove the schophrenic man around NE from 7am to 4pm every day to get him out of the house, to keep him out of everyones hair. Talking about the man living in the chemical isolated and the majority of his time being isolated in his car. Of course the self interest was it was cheap for the state and it provided income for the household.

A private human service provider was contracted to take care of this indivegual. A state employee/bureaucrat was the Gardium Ad Lidom for the majority of these people. I never could understand how they tolerated such horrible conditions. Of course the highest priority in this for the employees is meeting the political priority of the state.

They had layer and upon layer of employees who overseen these people -and each higher level who had more power over the people, and was more disconnected to the day to day needs of the indivegual. It was intentionally set up like that. It was an employment service and polical jobs program. They had a corporate employee who overseen the quality of care -they had a huge local non profit who did the training on the human service employees and a whole department who overseen the quality of the disabled for this area -then you got to the state agencies ---and the you get all sorts fedural overseers who all have blinded themselves.

I was in interview with the top nonprofit executive -who overseen the local quality of care and did investigations for the region-I asked her how could you allow this to go on. She just looked at me with sad eyes(three layers of management ended up being fired or asked to leave).

So you see what's going on with the executives of the state, the contractors and local non profits(kind of an arm of the state human service agency) knew about the game of scape goating the lower level employees as problems came into the public view. So the "good peoples" were so protected and the employees who actually touched the disabled were extraordenarally vulnerable to a coverup and the widespread abuse of power of the establishment.

It was an enormous protections racket where all of the politicians, state agencies, the non profits, and the contractors created this system of protection to the higher ups -everyone knew the the state was creating a inhuman gulog of services to the disabled with not having enough resources-and they created an huge protection and racket sceme to protect the elites of the establishment from the known systemic abuse of the disabled . You understand what I am saying, they knew they were creating inhuman substandard care of the disabled -and they created a protection system for the known problems of the system.

People think I am nuts -but I thought they needed a United Nation Investigation with this. Don't kid yourselves its governmental; fedural and state sponsored terrorism against the disabled. Don't misunderstand what I am saying. I am not asking the UN to investigate our government and bureaucrocies related to the care of the disabled. I am asking the UN to investigate your known involvement with this inhumanity. That's right the public --you--you --you!

Now I am going to get into big trouble -the public -the good people of the community are the prime drivers with creating this gulog. The public has corrupted all of the government and the bureaucrocies -so where are you going to find justice here. God help you if you get into the system.

I took care of another individual. His septic leach field was leaking fluid down the front of his house (he lived by himself). I called the septic service many times to drain the tank in order to get the bathrooms to work. I would like to see the septic tank pumping bills? The leach field was gone and the state just couldn’t afford to replace it. Again his house was in terrible shape and deinstitutionalization has worked like a charm. I asked them to give me some paint -I will paint the interior of the house –but they couldn’t find the money. So they had $8.00 an hour untrained employees working 24 hours a day to take care of this seriously disturbed man -they went through employees like diarrhea.

So I created a situation where I got a state human service investigator to come see what was going on in the house. He interviewed a few employees and managers –he talked to me last. He made an appointment to see me up in the corporate office. I basically said, you and I know what is going on here –I been to a few disabled houses in the area –and it’s disgraceful in what I see with the adults. He told me his NH boss has told all of the investigators to downplay of the conditions of the disabled for political reasons. I said, by the way, seeing how you are investigating an individual who I was taking care of –have you visited his dirty filthy rotten house with no leach field. He told me he had no intention in visiting the house –he is driving back to Concord NH as soon as he is finished with me. I said the objective with me creating an investigation is to get you to eye-ball the house. I said how could this be? He told me he wasn’t going to visit the house…

So a private human service company overseen by many state and federal would never bring you to a house such as above –and the media would never have the guts to tell you the real story –such that for decade we’d (all of us) negligently have taken care of many individuals –and our lack of resources created appalling inhuman conditions and trapped the disabled into frozen lives of no growth or the great slide backwards.

So the newspaper people are generally in direct contact with the bureaucracies of the disabled -they know about the extreme poor pay of the employees and the seemingly heroic work of the managers –so why would we want to pick on these people. Besides, we can all get on this phony altruism thing of speaking for the disabled –we are such good people—and we do it for free– aren’t we such good people –we speak…speak…speak of the good thing we do for the disabled –and we let the majority of them live lives of disgrace…living in shit…and piss…indifference… and early death that is on all of our conscience. Yes my friends, we are such good people…we talk of such good things… we do for free to the disabled… oh we are so good… good…good...!

So the mechanism of the human service agency especially the higher mangers are to selectively frame the conditions in the best light to the managers –and it’s never to just to tell the plain truth to the public. In the end, these bureaucracies become nothing but employment services for the politically connected –and they provide astonishing little services to the disabled. Many good people for years end up walking on top of the pathetic frozen lives of the disabled screaming for help –they know their service provider doesn’t have the funds to humanly take care of the disabled. They know it’s wrong –but they have to have a job and they have to have the status from the high paying executive jobs…of course that is the top ethics and morality of our times.

This is extraordinarily dangerous for you in this way but you don’t realize it. I believe the public knows what is going on -there is no doubt about that. So the politician’s knows the public won’t vote for the appropriate levels of human services of the disabled when they get into the anonymity of the ballet box- they won’t vote for the budget increases for the disabled. So the smart politicians cause the bureaucracies to selectively frame the issues about disabled –they hire the bureaucrats of the agencies –and their job is to provide jobs for their friends and provide the selective information that the politicians need. So the public demands the politician’s to lie; telling us the disabled are in pretty good conditions, that we don’t have to vote for tax increases, and you shouldn’t bother our conscience by telling us the pathetic truth. So a politician who just wants to throw the light of truth on the conditions of the disabled, they wouldn’t get voted in office because the public knows in the end they would need to take money out of their children’s pockets. Would you feed your child sitting across the table –or would you feed a distant child who doesn’t have parents watching over them?

So at the heart of this is the public is demanding and training the politician’s to lie to them. The public never ask the question of; why we don’t have enough income to help the disabled and not take money out of our children mouths. We are all cowards! You see how they use our kids as leverage against doing what’s right. Oh keep your ears and eyes closed –you couldn’t take the truth. You can only pick on powerless children.

So in the end the middle and upper class pick on the disabled class who is least able to defend themselves –they steal money for these poor people. In the end, the good people of a country turn the potent instruments of government against the least capable of us –they create all sorts of subterfuges and political games of untransparency; such that we create the illusion that the disabled are living lives like the rich. Right, these people don’t have the capability create a voting block against us.

Right, if there is only one scarp of food left to ease your families hunger and your competitor is a mentally challenged individual -you are going to use all of your god given intellectual capabilities in order to feed your children -even if I have to let the disabled to slowly die on their own. You would create a blizzard false intellectual illusions in your bureaucrocies and media; such that that you can make believe the disabled have adequate resources ---and that creates the justification that it’s OK to steal food from them... and it OK to steal the breaths from them--- or create the seeds of killing them.

Isn’t that the free market? By the way I knew three children –by the age of 11 the family killed the conscience of all their children. All of these kids were institutionalized until they were 21 years old. Two of the kids are in jail now. That is $250,000 for three children for 10 years-and about $50,000 for two adults for 15 years –that’s 9 million dollars over 15 years..and it’s going to go on for a lot longer time. One of these boys lived in my house for 2.5 years. So where was the community in the forming years of these kids?

I frame it like this –we got this huge inverted black monolithic pyramid. It even reaches to the stars. The Downs Syndrome 15 year old boy who is dead is lying on the ground. The point of the huge pyramid is sticking through his innocent chest. The other end is sticking straight up and is blocking out the sight of the stars themselves. The pyramid represents all of us -all of the pressures that is distroying human lives - sucking the life out of this boy(s) for selfish self interested reasons –even under the phony cover of altruism!

It truly is the law of the jungle with those who are needy -you have created it!

Thanks,
mike mulligan
Hinsdale, NH